Interim Executive Director
Sarah Kasper was a volunteer with Camp Twitch and Shout from 2013-2018. She served as a counselor, Unit Leader, and was the founder of the #Swear2Change campaign. Through her work with fundraising and marketing for Camp Twitch and Shout, she was awarded the annual Frank Lozzi Award, given to a camp volunteer who exhibits dedication to the organization outside of the camp week. She is excited to continue to help improve the lives of individuals living with Tourette Syndrome in a more formal role through the TICS Board of Directors. Sarah resides in Charlotte, North Carolina, where she lives with her partner and their two rescue dogs. She works as the Public Relations and Social Media Manager for the Children’s Theatre of Charlotte, while also freelancing in digital marketing and event planning for various industries. She is fueled by a passion for serving others. In her free time, you can (try to) find her wandering the Blue Ridge mountains.
Seth Tucker has been a volunteer with Camp Twitch and Shout since 2010 in many different roles. He is glad to be back helping an organization and cause near and dear to his heart as TICS’ Vice President. He has been diagnosed with Tourette syndrome since he was 6 and has dedicated much of his adult life to making life better for those living with Tourettes. Seth was honored by the Tourette Association with the Distinguished Educator of the Year Award in 2016 for his work with students with Tourettes as well as for training hundreds of teachers on best practices for teaching those with Tourettes. He previously served as the Vice Chair of the Mid-Atlantic Chapter of the Tourette Association. Seth currently works as a special educator in Maryland.
Board of Directors, Treasurer
Frank Lozzi serves as the Treasurer of the Board of Directors for TICS. He was diagnosed with Tourette Syndrome at a young age and joined Camp Twitch and Shout in 2013 as a counselor. Over the past six years, Frank has worked with the oldest boys and the Leaders in Training program. He has also run a yearly fundraiser in his hometown of South Philadelphia to raise money for camp, which has raised over $25,000 in its 6 years. Frank joined the Board of Directors in 2018 to bring his Camp and Accounting experience to the table to help this organization grow and prosper. Frank is an Accountant for Parsons CPA, LLC in Charlotte, NC. He enjoys playing hockey and soccer, rooting for his Philadelphia sports teams, and hanging out with his partner and 2 dogs.
Dr. Sherry Adesina
Board of Directors, Secretary
Dr. Sherry Adesina joined the board of TICS in May 2018. She attended Camp Twitch & Shout that same year, getting to meet several amazing kids. In her career, Sherry studied neurologic disorders, as well as a wide range of other clinical conditions. In her spare time, Sherry is a burgeoning hiker… inexperienced, but enthusiastic. She also likes singing off-key and believes she would have been an excellent video DJ if MTV still played music.
Board of Directors, Member
Hailey Sasine Burden was one of the founding directors of Camp Twitch & Shout in 2008. She served as Camp Director from 2008 to March 2013. She is excited to be back involved with the organization that was such a big part of her life. Hailey resides in Woodstock, Georgia with her husband, Matt, and their two children, Zander and Kaya. She is currently a special education teacher in Cherokee County for kids with low-functioning Autism. In 2019, Hailey wrote her first book called ABC’s of Tourette Syndrome. Hailey has her passion for camp because she was diagnosed with Tourette Syndrome at age 11 and wanted to give other children the opportunity to meet others like themselves and see that they can do anything they put their minds to. In her free time, Hailey enjoys traveling with her husband and watching UGA football.
Board of Directors, Member
Amanda Jacobson is the manager of Women United, a women’s leadership program for the United Way Suncoast and is passionate about supporting women in leadership and cultivating activism and engagement in community issues. Amanda was born and raised in North Carolina but now lives off the Gulf of Mexico in Tampa Bay, Florida. Her professional background is in development, event planning and public relations. She is the Inclusion Chairwoman of Emerging Leaders of Tampa Bay with the Greater Tampa Bay Chamber of Commerce and mentors young people in her free time. She has also led other nonprofit boards including the Women As Leaders Network – St. Petersburg and her alma mater, Appalachian State Universities Alumni Central Florida Board. Amanda and her husband Andy enjoy volunteering, kayaking, hiking and spending time with their pup named Coffee.
Board of Directors, Member
Cassandra Assefa joined the board of TICS in September of 2019. Her past volunteer and non-profit work includes: coaching high school students in their pursuit of post-secondary employment and other college alternative pathways; working in policy at an advocacy non-profit for individuals with developmental impairments; packaging meals for those who face food insecurity; and most recently volunteering in Puerto Rico rebuilding roofs after Hurricane Maria. She is excited to serve on the board and contribute to TICS’ mission and great work, including Camp Twitch & Shout.