“Our mission is to improve the lives of people diagnosed with Tourette syndrome through the development of social, educational, and supportive programs and resources to benefit these individuals as well as their families, friends, communities, and healthcare professionals.”
Tourettes Information Center & Support
In 1986, the Tourette Syndrome Association (TSA) of Georgia was incorporated as its own non-profit that was affiliated with National TSA. The TSA of Georgia was created to provide a family support organization through occasional conferences and phone support for those who experience Tourette Syndrome. TSA of Georgia also attended IEP meetings, when needed, and provided educational talks to schools.
The larger the support network grew, the more obvious a need for a sense of community became. In 2008 the first Family Weekend was organized. Attended by approximately 20 families, the Family Weekend was held at Camp Twin Lakes. This partnership with Camp Twin Lakes has been extremely important to the organization and continues strong today.
It was through this initial partnership that Camp Twitch & Shout was born.
The TSA of Georgia separated from the national TSA in 2009 and changed its name to “Tourettes Information Center and Support of Georgia (TICS of GA)”. That same year TICS of GA, continuing in partnership with Camp Twin Lakes, organized and held the inaugural Camp Twitch & Shout. The first Camp Twitch & Shout was attended by approximately 40 campers and 20 volunteers mostly from Georgia and surrounding states. Camp Twitch & Shout now accommodates over 140 campers and over 100 volunteers each year.
Since its inception, Camp Twitch & Shout has hosted campers and volunteers from over 30 U.S. states and 4 foreign countries. In 2017, in order to represent this growth and broaden its presence nationally, TICS of GA changed its name to Tourettes Information Centers and Support (TICS).
Since its founding, Tricia Kardon has served as Executive Director of TICS and is also serving as Director of Camp Twitch & Shout.
TICS is proud to have expanded their network of support and facilitated a sense of community among those who experience Tourette Syndrome. Through year-round family support services and running Camp Twitch & Shout, TICS strives to provide a more inclusive environment and better understanding of this disorder.